Press Releases
After being the president of NR2F1 Foundation since it's beginning in 2018, Carlie Monnier is stepping down to become the new vice president. Jennifer Coughlin is the new president.
The NR2F1 Foundation has raised the funds to award their first grant to a postdoctoral researcher who will be focusing entirely on BBSOAS and the NR2F1 gene.
2023 was an eventful year for the NR2F1 Foundation, with many accomplishments. Fundraising, research planning, and research goals for the next 5 years.
Sponsors are needed for the 2024 Family & Scientific Conference in Orlando. Different levels of sponsorship are available for businesses and individuals.
A roadmap for research for the next 3 years has been developed by the NR2F1 Foundation. It includes exciting research into molecules that can potentially help with symptoms of BBSOAS.
The NR2F1 Foundation will hold their first research strategy meeting with board members and scientific researchers to collaborate and brainstorm a research roadmap.
Riding to raise funds for research was a success for the NR2F1 Foundation bicycle team, as they rode in the Million Dollar Bike Ride in Philadelphia. Over $20,000 dollars was raised.
The BBSOAS Center of Excellence launched on April 21, 2023, at Cincinnati Children's Hospital with the assessment and evaluation of the first three BBSOAS patients.
On June 10, 2023, the NR2F1 Foundation is participating in the 10th Annual Million Dollar Bike Ride as a fundraiser for rare disease research. All funds will go directly to the foundation.